— Meet Agnes. I built her out myself; inside and out; ALL of it. She kicked my ass a lot of the time, but I needed to test my spirit and see what I was truly made of. I’m pretty proud of how we both turned out. 😊
Autoimmune diseases have ravaged by body since my mid twenties. Arthritic pain and stiffness was the norm, in every joint. Skin issues, hands slowly betraying my intentions, restless legs and sleep, and a dependence on lab results with hopes the medications weren’t destroying my body, too. It’s no life to wish for, but I’ve never let myself feel the victim, and never self identified as my disease. I’m sure I got that from my Mom. “We play the cards we’re dealt, Molly, that’s just what we do.” So, I have.
In my mid forties, after two and a half years of chemotherapy that nearly decimated my body and spirit, I was told something that rocked me to my very core. The chemo did its job, and arrested the growth of scar tissue in my lungs, but the words my doctor put together to ease the worries of my future, did the opposite. “Don’t worry, Molly. We can keep you comfortable.”
Those words, after the initial, kicked hard in the stomach feel, lit a fire under me that has continued to grow! I haven’t needed the “comfort” offered, or the “wisdom” of western medicine, in over a decade, and though my hands will always show that something “isn’t quite right,” my body and spirit feel as strong as ever, and I feel whole and happy.
So, meet me, and my self built studio/van, I call Agnes. She’s a one ton testament to my gumption, independent spirit, and willingness to create a life I live on my terms. I guess you could say she’s my “earthship,” shuttling me all over this country, as a home to live in and studio to work from. I don’t want to rest my head anywhere else.
Take a peek at my profile to see how I support my journey and keep my creative soul happy. — Molly .
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